Wednesday, October 23, 2013

To the family we haven't met - yet...

I recently was asked by our pediatrician (who is absolutely awesome, love her) if it would be okay if she gave our name to a new family of a baby that was born with Down syndrome that’s in her practice. She said they are not ready to make “contact” yet, they are not at that point, it was a surprise diagnosis and everything is fresh and new. I immediately burst into tears, one reason was because, OH, do I remember that feeling and second because I was honored she asked us. I told her about the blog and the reason why I started it was to reach out to new families that weren’t quite ready yet and to help them know that it would be okay. To look at our pictures and see that we are just like any other family; life is what you make it. I gave her the blog address, a copy of Our Super Hero Life essay and my email.

Doc emailed me last night and said that she had met with the family and they still weren’t ready yet, but they did want to look at our blog and this is where the guilt set in. I haven’t been quite on top of the whole “blog inspiring new parents thing”. Yes I write about our day’s ins and outs but don’t really write much about Down syndrome. The number one reason why I don’t is because it isn’t the biggest part of our life. It actually is minimal, really… Yes, Asa was born with Down syndrome and I’ve said this time and time again - Down syndrome doesn’t make Asa who he is, Asa makes him who he is. He’s an individually who happened to be born with Down syndrome.

 So, to the family we haven’t met – yet, I want you to know that it will be okay. Everyday will get a little easier; you will fall head over heels in love with your little bean if you haven’t already! Yes, it is hard, there is anger and anguish, but there is love, hope and dreams. You don’t have to throw away the dreams you had before your nugget was born. They will still accomplish so many things and you will be SO PROUD. I remember the day we got Asa’s diagnosis and I called my Dad. He said, “Don’t you give up on him” the thought had never crossed my mind, but those were fighting words to me because I told my Dad it only means we fight harder. Though the fight has its ups and downs, that’s how life rolls for anyone. As time passed and we “evolved” rocking my sweet baby to sleep I started to thank God for giving me such a precious gift, that he had enough faith in me to do this, to raise this child who is so special. I still thank God for Asa; I am SO SO PROUD of him. There are no words to describe how important Asa’s presence is in our lives and everyone he knows and meets. We recently did the Buddy Walk and Asa’s school aide and her family came. One of her daughters said this "You know Mom, you say that Asa is lucky to have his friends/class at school but they are really lucky to have him, they will always be a special class because Asa is in it and they will have him as a friend". She said it better than I ever could…

 In closing, please know that you are not alone and what you are feeling is normal. This is a new beginning of something that is wonderfully full, satisfying and magical. Even better than a Snicker’s bar when you are really hungry  :-) Time heals everything and it truly goes by way too fast. Enjoy your baby, hold them close and breath them in, hold their little hand and rub those tiny fingers because before you know it they will be climbing on a school bus blowing you a kiss goodbye and leaving you behind…

We share in your journey; we’re here if and when you need us. Don’t wish it away, embrace it and love with all you can give because you will certainly get it in return…


  1. Your family is so awesome! I just love you guys! You've had an amazing, yet unexpected journey that has really shaped you into better people than you already were. =)

  2. oh jackie thank you for this. i have struggled alot about this lately too. i started this blog for family to keep up with us but also in hopes a family would come across it and realize life is better than just OK. down syn. does not make william or our family so it it not my main focus on my blog. life become life and we are just the way we are


Blog Archive

About Me

My photo
My name is Jackie and I am a mother, wife, friend, sister, daughter, cousin to many, and a dreamer of sorts. I dream of many things and one is a life full of acceptance, achievement and success for my Super Hero son Asa. He's got extra good stuff that comes with a little thing called Down syndrome. We live in the beautiful state of New Hampshire with our 2 Bulldogs; Rosie, Frankie and 36 chickens.